Friday, August 28, 2009

Hanging In.

You know, some days this stupid disease called Diabetes makes me want to rip all my hair out and scream at the top of my lungs. Could something be any more frustrating? I mean, no matter how diligent you are, no matter how hard you try and no matter how much you log your numbers and your insulin intake and carbs - you sometimes wonder WHY AM I DOING THIS?? Because in the end, the disease does what it wants to in the end anyway ... all that hard work for what?? An increased a1c?? Holy hell yeah.

I don't get it. I don't think I'll EVER get it. I know this, but it never ceases to amaze me. My kids body just keeps throwing me for a loop.

Yes, D's a1c went up and I'm not happy about it. After battling a month of lows and decreasing her Lantus the day before the appointment, this threw me for a loop. I guess the only thing we could think of was that she was rebounding a lot from those lows, thus causing the higher a1c.

So, since cutting back the Lantus a few weeks ago, my kid has been HIGH - so danged high that the other day I couldn't stand it and had to increase her Lantus back to what it was. It still isn't settling as nicely as I hoped - but we're slowly getting there.

What the hell is going on?

BAH! All this before school starts. Great. They're going to want a plan - they'll be looking to me for advice, for what to do's, etc., and I can't tell them squat right now because we're flying by the seat of our pants at the moment. One more week is all we have to get this straightened out.

I just sooo wanted her to start off her school career on a good note and not have things so whacked out. Her teacher and EA are going to think I'm a nutjob. *sigh*

Damned disease.

In the meantime, despite this crummy stuff, we're trying to enjoy the last few days of summer. Going camping this weekend and a quick trip into the U.S next week for a couple of days to shop. A nice little getaway before back to routine. Although this summer has been so hectic with us going out of town and having company/family in for visits, I'm actually craving that stability that the routine will offer us once again ....

Till later.

Saturday, August 15, 2009

Hair update.

I hate thinking up titles for my blog entries. But, as I was just thinking about what I wrote about in my last entry, I guess I can update on B's hair status. It's FINALLY starting to slow down (the hair loss, that is). We're VERY relieved as all her bloodwork came back normal - if this had continued on as heavily as it was, the kid would have been bald by the time school started.

Anyhow, while it is still shedding, it's way less than it was. So, I think the culprit was that virus she got back in May, of all things. Leave it to our family to have funky weird health things happen.

School starts in a month - I'm just waiting to get a phone call from the school nurse to set things up. It's hard as we're trying to make plans for that week before school starts (V has holidays then and we want to go away). I'm trying to limit the time we're away in case we're to go in for some training. I don't know what to expect. So, just a little bit frustrated at the moment.

Dani had her appointment at the diabetes clinic earlier this week. Her a1c was up, which shocked/upset me. For the last month we had been battling LOWS of all things - so I had just cut back her Lantus. I figured with all the lows we had been dealing with, she'd have a decent a1c (not that I wanted a good one because of the lows - but if it HAD been a good one, I would have known WHY). But it was UP. Baffled me. We talked to our endo and educator and we figured that the reason it went like that was because of all the rebounds from the lows - lots of unpredictability and that it was a good thing I cut back on the Lantus - to smooth things out. UGH. I just felt sick walking out of there. They said the a1c wasn't horrible or anything - I was still doing a good job, but we just hadn't seen a number like that since, well, she was diagnosed. (and it wasn't horrific then, either) So now I am obsessed with those blood sugars like you wouldn't believe ...... (and every time I make adjustments to the Lantus, her I:C ratio goes all wonky and it takes me awhile to figure that all out too - so we're a bit in limbo right now until all settles). BAH!!!!

Rant over. We'll deal. Just hope I get it all down to a science before school starts (then it'll go all stupid again on me, right??!!).

Anyhow, V works today, it's rainy out and I think we'll go out, get some groceries and rent some movies. It's a "movie" day me thinks. The other day we got pelted with golfball size hail - damaged our truck and ruined the kids playhouse in the back yard. Could have been worse I suppose. Our trailer managed to go unscathed. Scared the hell out of us at 4 a.m. though. Sounded like someone was on the roof with a freakin' jackhammer!

Gotta love those summer storms.

Well, that's about all for now. We have a busy few weeks coming up, but that's ok, it'll keep the kids happy and maybe they'll fight less *riiiiigggghhhht*.

Later.